Saturday, July 24, 2010


This update is long due. Since I had my last appt with Dr. Burt I havent posted anything. There s not much to say other than it s been a month since transplant and I'm having a little more energy . The first few weeks all I did was take naps all day long and rested a lot from doing nothing. lol, I had very little energy. The body and the immune system its like the one of a baby. Just like they said it would be.
Blood counts are going up little by little. I dont do much or go anywhere. I had an allergic reaction 2 weeks ago and Chicago took me off of 2 of the antibiotics , I had to be even more careful not to get sick.
They are introducing them back one at the time to make sure they were not the cause of the allergic reaction.

Several people have asked me if its working and the answer is....It s hard to tell yet. My neurologist said last week that I am getting stronger and walking better. Reflexes were strong , never seen a response like that before. We were both surprised. I dont feel pain all the time like I used to. Fatigue is bad like before or worse, but they said is normal for the first few months after transplant.

I cant wait until my numbers are up to be able to go out or see more people, and have more it s been boring.
Im trying to follow the rules because I know at the end it will be worth the effort.

Thursday, July 1, 2010

Appt with Dr. Burt

I had my last appt (for now) with Dr. Burt yesterday. Lab work was excellent so he said I can go home to Florida anytime !!! YAY... and he'll see me in 6 months.

We went over all the medicines I have and told me not to take any of them anymore, except the ones he prescribed which are 2 antibiotics and 1 antifungal that I have to take for up to a year. While the inmune system is building up. He also advised me that I may have some withdrawal symptoms from steroids, since I was on it for over 12 years and from the other medicines. That and the pain will go away.

Now Im getting ready to go home to Florida this coming monday. Im packing and cleaning very slowly. Im very tired. They said is normal to feel like that for a couple of weeks.

I'll keep you update but I wont be writing as much, since I dont think much is going to be
If you have any questions , you can always email me.

Thank you all for reading the blog, for the prayers and good wishes.